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NoExcuses
31 Jan : 11:25
Kalydeco approved! http://www.cff.org/aboutCFFoundation/NewsEvents/1-31-FDA-Approves-Kalydeco.cfm
Rosielee
31 Jan : 07:41
CF in the news:http://www.dailymail.co.uk/health/article-2093771/Teenager-given-days-live-life-saving-lung-transplant-spending-10-YEARS-hospital-planning-funeral.html
2005CFmom
30 Jan : 22:23
Jennifer, my husband has a bronchiectasis diagnosis and he uses pulmozyme. He was tested for CF the test came up negative. I think his doctor felt his was a very special circumstance and wanted him to be on pulmozyme.
JennifersHope
30 Jan : 21:53
I know 99.9 percent of the people on here have CF dx, but does the people on here that don't have CF but just bronciactesis inhale Pulmozyme? I was on it for years, and taken off of it when I was undiagnosed, now they are trying to get me back on it and I don't think I am going to get approved, anyone have any luck with that?
TexasDex
29 Jan : 22:26
Please bear with us, some site features may be unavailable while we attempt to upgrade to the latest version of the forum software.
catboogie
28 Jan : 12:04
I am blind. Thank you, Amanda. :)
Mandagment
27 Jan : 11:21
catboogie, go to the general forum, at the very top, there is a 'how to" thread with a orange circle next to it. Our very own Seven made it.
catboogie
26 Jan : 21:44
can someone tell me how to post a photo on the forum?
Rosielee
26 Jan : 01:10
I know, I am aware of the vast amount of mutations out there, but over here, the hospital and private clinics only test for 50 that are most common in medditerranean people. In the UK it is the same, so I'm gonna have to kinda trust them, because I have no other option. Thank you very much for letting me know though, I do appreciate it, but I have no other option. Thanks again :)
NoExcuses
25 Jan : 14:17
@Rosielee be careful about testing for just 50 mutations. We have someone on this site who wasn't tested for all known CF mutations (there are over 1000) and she ended up having a child with CF because he husband's mutation wasn't picked up on the small screening.
View all posts (3378)
Bear with us during upgrades
TexasDex, Sunday 29 January 2012 - 22:23:04 // comment: 0
We have encountered some technical issues upgrading to the latest version of our forum. We ask that you bear with us while we figure out how to get everything working properly. In the meantime some site features such as photo galleries and recipies may be unavailable. When I'm done all the extras, including the CF2 calendar, should be enabled again.
Security warnings
TexasDex, Saturday 07 May 2011 - 22:49:29 // comment: 0
Some of you visiting the site earlier today may have been warned that it was 'unsafe' and being used to host malware. One of the files on our web host was modified to try to use our website to attack computers that visited it. This has been fixed, and I am currently examining the access logs to make sure it doesn't happen again.
New Look
IG, Friday 11 September 2009 - 22:25:10 // comment: 2
As most of you may have noticed we have a new banner with a new logo! While the banner might not stay forever, we are planning a total site upgrade eventually, we do have a new logo and some other goodies like site buttons and a printable flyer. Our thanks goes to Kelly, aka Cowtown, who has been working with us on the redesign!
Flyers
IG, Friday 11 September 2009 - 12:53:58 // comment: 2
As discussed we now have flyers to promote the website. Please feel free to download, print, and hand them out.
We also have a series of buttons/site badges for you to use in your blogs, website, or signature:
[ Read the rest ... ]
| They are available in two-per page format: | You can also use the full page flyer: |
 |  |
We also have a series of buttons/site badges for you to use in your blogs, website, or signature:
[ Read the rest ... ]
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