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vitamin k-
05 Sep : 23:42
and cheese.
mom2lillian
05 Sep : 10:26
rock on Piper....oh and bring on the typhoid fever LOL. I can see a weird X-files type show now where some crazy CF scientist lets it loose on colleagues he's ticked at *evil laugh*
Momtana
04 Sep : 17:02
Piper
NoExcuses
04 Sep : 14:07
Yey Piper!PS we have fallen to #3 in the Pepsi Refresh Project
http://bit.ly/bJhm7v
j8411
04 Sep : 13:18
mac
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 SICK |
| Author | Post |
| chatterbox |
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  Joined: Sat Aug 16 2008, 03:05PM Posts: 362 | hello, ya'll. Sonia 32 CF and CFRD | ||
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| Mandagment |
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   Joined: Tue Jul 31 2007, 12:13PM Posts: 1350 | It is really up to you. You can go and consult with your dr and get a better idea. Like ask them what you just asked us. I know we never think of these things while talking to them lol. I do know in my own experience when I do get a virus and it goes to my lungs I end up needing IVs or a hospital stay. The virus for me turns into a lung infection...so two different things. So while the virus will run its course it allows the crud in my lungs to stir back up since my body is fighting the virus, it just runs down. I have no idea on your questions about being resistant and still doing antibiotics. It maybe they just need to find a good combo, and to do that sometimes is trial and error. But do ask them this question. berriedtreasure.webs.com | ||
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| tara |
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 Joined: Wed Aug 15 2007, 02:37PM Posts: 1228 | I would most definitely fight this infection with antibiotics. I hope you can find a combo that works. I always get a secondary bacterial infection flare up when I've had a virus. Everything goes straight to my chest. That part is not viral, that's bacterial flare up of the CF bugs living in there and they can be treated with antibiotics. When the inhaled antibiotics don't work for me, I turn to IVs immediately. So yes, I think your doctors are doing everything right and I think you should definitely get a PICC. Tara 34w/CF mom to Tom and Abby (twins/no cf, born 10/1/04) | ||
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| wanderlost |
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  Joined: Tue Jul 01 2008, 07:35PM Posts: 487 | I would take the abx. I wish when I had H1N1 in October I would have gone on antibiotics right away. The thing was, the virus didn't feel like it was in my chest, but in the weeks that followed the inflammation from the virus caused me all kinds of trouble and led to one of the worst infections I have had. I wonder if I could have held that off and not had two months of illness had I been quicker at the get go to take care of business? I'll never know, but I would certianly do it different if it happened to me again. 32 W/ CF mom to 2.5 munchkins http://www.laviecystique.blogspot.com | ||
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| PinkPigg |
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  Joined: Sat Jan 02 2010, 01:30AM Posts: 53 | Go for the abx. I had a really bad virus of some sort in Dec and ended up with an overlying infection. Pan resistant here too. Started with IVs in hosp. Then did 3 wks of Tobi. Now I've been off abx for almost (knock on wood) two weeks. If pigs had wings away they'd fly!!! www.ifpigshadwings.blogspot.com 41 yr old married female with CF D508. Retired March 2009. 28% FEV1. O2 only when sick. Huge believer in the power of exercise to improve quality of life. | ||
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| froggy |
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 Joined: Mon Jul 14 2008, 08:21PM Posts: 739 | The abx would be profilactic in this case, meaning it could help prevent you getting a secondary bacterial infection. My doc did that with me when I had the flu 6 or 7 years ago. I know that when I start in with the virus thing I always worry about it moving south into my chest and when it happens it takes FOREVER to get over if I don't use abx. I'm Jessi, 28, CF, CFRD, fibromyalgia, osteopenia, and I live in the Seattle area. I am mom to a gorgeous kitty, and the significant other to a wonderful guy. | ||
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| NoExcuses |
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 Joined: Sat Jul 26 2008, 03:53PM Posts: 1018 | Once you're colonized with bacteria, which most CFer's are, the bacteria grow in number (hence exacerbation) when we get a virus the majority of the time. Allowing the bacteria to grow recruits more neutrophils to the site of infection in your lungs. Neutrophils can't really do anything because they can't move in the thick mucus, so they're not very effective for the bacteria. Plus, when the neutrophils die, they secret the equivalent to bleach, causing permanent lung damage. Long story short - you will probably be able to kick the virus on your own, but treating PA and other bacteria in your lungs can't be treated without abx. Saving some lung damage could be super helpful down the road. SOrry you are deailng with this.... it's been such an awful cold and flu season. Take care 29 F wCF. MDRPA, hemoptysis, gall bladder removed, appendix removed, inguinal hernia repaired, 2 DVT's from PICC. eFlow user. inCourage Vest advocate. N-Acetylcysteine groupie. http://noexcusesnoexcuses.blogspot.com/ | ||
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| mom2lillian |
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  Joined: Tue Jul 15 2008, 07:45PM Posts: 504 | in my experience if you dont treat then the virus may run its course just in time for the bacteria to get a foot hold and start kicking your butt which then extends the duration of the whole deal and is twice as hard. I would be pro-active. Nicole 30 w/CF DX@21 Married Momma of a 3yo ABPA, Bronchiectasis, Pseudo, Achromabacter, Systemic Candida (ask me about this!) http://cftoo.blogspot.com/ | ||
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| Skeez |
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  Joined: Mon Jun 30 2008, 07:44PM Posts: 595 | I agree with what everyone else has said. The point of going on antibiotics for us is not really to kick a virus, because as you know, that has to just run its course, but it's to prevent a CF flare-up. When the body is fighting the virus, it leaves the door wide open for all that PA and other nasty bacterial crap we're culturing to run wild. You don't want that on TOP of the nasty virus. IVs it is, unfortunately. Rhi | ||
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| Juliet |
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 Joined: Thu Jul 17 2008, 08:42PM Posts: 760 | Even before I was dxd with CF I'd go on abx for bad viral infections just "to keep it from settling in my lungs." Reading all the explanations above I understand now, why, with CF that just seemed to work for me for 40+ years. Definitely go on abx. ~Juliet 45 w/ CF. DX@43. Counting down to starting the next 18mos of MAC treatment. Score: MAC - 2, Juliet - 1 | ||
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| chatterbox |
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Joined: Sat Aug 16 2008, 03:05PM Posts: 362 | thanks, everyone. after talking to the nurse today who explained to me that TONS of people have called her with my exact symptoms and all but 2 have kicked it and gotten healthy at home after 2-3 weeks, i decided to wait another week and just see. mostly the reason i'm waiting is because i received the expanded access azli today so will be starting that tomorrow for 28 days. since i hadn't been on an inhaled abx for about 7 weeks, i'm hoping just this will help me get this under control. don't worry, i'm watching it very closely and we still do have a PICC appt. for tuesday (just in case). i just want to be sure and my fever is slowly getting better. i'm only down to tylenol (no motrin) every 6-7 hours for a 100.5 (highest) fever. thanks for the support everyone. please send me good vibes that i can get rid of this thing.  Sonia 32 CF and CFRD | ||
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| LouLou |
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  Joined: Tue Jul 29 2008, 07:52PM Posts: 213 | two things I wanted to mention: | ||
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| mom2lillian |
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Joined: Tue Jul 15 2008, 07:45PM Posts: 504 | Lauren-that 4 day rule is interesting way of looking at it I hadnt thought of that so I'll have to start keeping track. I used to pat myself on the back for being able to ditch things on my own but I dont think I was returning all the way to baseline. I only wish there were some orals that worked for me *sigh* I woke up with a sore throat, hopefully its jsut the dry air. Nicole 30 w/CF DX@21 Married Momma of a 3yo ABPA, Bronchiectasis, Pseudo, Achromabacter, Systemic Candida (ask me about this!) http://cftoo.blogspot.com/ | ||
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| Turtles |
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 Joined: Mon Jul 14 2008, 10:56PM Posts: 89 | I'm kind of late...but, I would do the antibiotics as well. My dr is a big fan of waiting to see if the viral stuff clears up, and meanwhile I'm begging for meds because I end up with secondary infection every time lol. Oh, editing to add that the reason my dr tries to hold off on antibiotics for as long as possible is not because he's mean or anything like that kind of sounded lol. My options are pretty limited to Cipro, Tobra, and Cefapime for what work for me. Taking those more often could, of course, lead to becoming more resistant to those as well, so he just tries to hold off if at all possible. But, I usually end up on the meds anyway and then I'm mad thinking I could've saved myself a week of sickness. [ Edited Sun Feb 07 2010, 09:27PM ] ~Cindy~ 29, Wife, Mommy, Sister, Friend...oh and DDF508 | ||
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| CowTown |
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 Joined: Tue Jul 15 2008, 04:08PM Posts: 911 | I hope you feel better soon. 36 f_w/cf F508del/G542X "The truth will set you free, but first it will piss you off." -- Gloria Steinem (copied from LittleDebbie's old sig.) | ||
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| Jennifer |
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  Joined: Wed Jul 16 2008, 08:06AM Posts: 430 | I think antibiotics would be best! Jennifer, 30 with CF | ||
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| Juliet |
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Joined: Thu Jul 17 2008, 08:42PM Posts: 760 | How are you doing Sonia? Is the Azli having an impact? ~J 45 w/ CF. DX@43. Counting down to starting the next 18mos of MAC treatment. Score: MAC - 2, Juliet - 1 | ||
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| chatterbox |
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Joined: Sat Aug 16 2008, 03:05PM Posts: 362 | thanks, everyone! the azli does seem to be breaking things loose like crazy. i've been coughing up tons. i still have no energy and spike a fever every night before bed, but i've been told by several nurses (some relatives) that whatever this strange virus is going around, this is the course it takes and it usually take a TON out of people. so, i'm just waiting it out and trying to rest and drink tons of fluids. will keep you posted. i'm giving it this week and if i don't feel a lot better next week or feel more congested, etc., i will go on IVs. however, to be honest, since starting the azli, the cough has become extremely productive (and feels GREAT to get stuff up!) so not sure its coincidence or what, but i'm feeling better in that regard. Sonia 32 CF and CFRD | ||
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